Needs and perception on palliative care among cancer patients with regard to quality of life during hospitalization
The study was focused to explore the understandings of adult cancer patients with regard to meeting their palliative care needs to maintain their quality of life during hospitalization and to identify their perception on palliative care provided by the nurses.
Mixed method study design was employed to explore experiences of patients with regard to meeting the palliative care needs and satisfaction. The target population for this study was patients at National Institute of Cancer, Maharagam (NICM), Cancer Home (CH), Maharagama, Shantha Sevana Hospice (SSH) and Ceylinco Oncology Unit (COU), Colombo, Sri-Lanka. Purposive sampling technique was used to select participants. In-depth interviews were conducted using validated interviewer guides. Trustworthiness of the qualitative study was maintained. Data saturation was reached at 16 in-depth interviews with patients. Phenomenological-hermeneutic approach was followed to analyze qualitative data and thematic analysis was performed. Data analysis was done concurrently with data gathering. The identified main themes were caring, seeking more information and experiencing psychosocial support.
Quantitative data were collected following descriptive cross sectional study. Random sampling technique was used to select
participants for the quantitative study. Minitab statistical package was used to analyze the data. Palliative care needs of adult cancer patients were well identified by the nurses and the level of satisfaction of patients regarding provision of physical and psychological care was high. Patients’ perception on the palliative care they receive from the nurses was good. However, the study showed that further to the care they receive from the nurses, patients need more information, counseling and homely environment to maintain their quality of life.